Virtual Medical Centre

Information for Carers of Dementia Patients

• Introduction to dementia
• Dementia and dressing
• Dementia and activities
• Dementia and communication
• Dementia and healthy eating
• Dementia and personal hygiene
• Dementia and sleeping problems

Introduction

Dementia is the gradual deterioration of mental or cognitive function. Alzheimer's disease accounts for 50-75% of all cases of dementia. Other types of dementia include vascular dementia (multi-infarct dementia), Lewy body dementia (LBD) and frontotemporal dementia (Pick's disease).

In Australia, it is estimated that there are 227,300 people with moderate to severe levels of dementia. Furthermore, 57,000 new cases are expected to be diagnosed in 2008. The number of people suffering from dementia is expected to rise due to an ageing population.

As an individual's dementia worsens, he or she will need more care and assistance. Consequently, many people with dementia live in professional aged care facilities. If you are caring for someone with dementia, you may find the following tips useful.

Mini-cog The Mini-Cog is a 3 minute test which can be used to discriminate between demented and non-demented persons.

Dementia and dressing

People who suffer from dementia often have trouble dressing and need assistance from their carers. This can cause them embarrassment and to feel as though they have lost their independence. To help avoid these feelings, try to:

• Use slip-on shoes
• Use velcro straps instead of more fiddly buttons and zips
• Select easily washable clothes that do not require ironing or dry-cleaning
• Simplify the choice of clothing by laying out a limited number of outfits on the bed
• Avoid brightly coloured clothing

Dementia and activities

Engaging in activities help dementia sufferers stay occupied and entertained. Some handy hints are:

• Allow old roles between the sufferer and carer to be established. For example, give them small responsibilities such as setting the table for dinner.
• Make sure activities are simple and unhurried, allowing the sufferer to complete the activity without feeling pressured by time constraints or other people. For example, painting allows self-expression and relaxation. Carers may have to show them how to begin painting. Remember that this kind of activity will only be complete when the dementia sufferer says it is.
• Make sure you are in a safe working area. For example, don't use toxic paints or sharp instruments. This will prevent any accidents and distress occurring during the activity.
• Plan activities for when sufferers are at their best during the day, to derive the greatest enjoyment from the activity.
• During the activity, do not overwhelm sufferers by overstimulating them. For example, flashing lights or loud background noises should be avoided.
• Some people will benefit from activities that focus on sensations. For example, brushing their hair or receiving a massage can be enjoyable activities. Similarly, a sense of rhythm and movement may encourage them to carry out an activity.
• Play music and encourage them to participate (e.g. clapping or moving to the music).
• Activities should also be consistent and, if possible, regular. This will prevent the sufferer from feel disoriented or needlessly confused. If multiple carers are in charge of one sufferer, it may be helpful to use a timetable to coordinate activities.

Dementia and communication

Dementia sufferers often have trouble communicating. This can be both frustrating and upsetting. It is important to be patient and allow people suffering from dementia to communicate their needs without pressure or interruption.

• Avoid background noises and distractions to encourage them to focus on communicating with you.
• Use body language as a way of non-verbally communicating with the patient. Actions may be more easily understood than words, so use a reassuring hand or actions to help you communicate.
• When you are speaking, use short and simple sentences. A gentle and measured tone will help put a dementia sufferer at ease.
• Dementia sufferers may become aggressive when they are uncomfortable but cannot communicate their discomfort.
• Allow time for them to understand and communicate with you.

Dementia and healthy eating

People with dementia often have trouble swallowing. To help them eat, try to:

• Moisten food with gravy and sauces
• Cut the food up into smaller pieces
• Demonstrate chewing to remind them that they must chew as well
• Stroke their throat to initiate swallowing and gently remind them to swallow each piece of food

People with dementia may also have trouble noticing food temperatures. Check the temperature of food before giving it to them.

To prevent meal times from becoming stressful:

• Stick to regular meal times
• Make the environment relaxed and calm by playing music in the background
• Encourage them to eat all of one food completely before moving on to the next
• Present the meals on a plate that is not brightly patterned to prevent confusion

Dementia and personal hygiene

People with dementia may no longer be able to maintain their own personal hygiene. It is important to be aware of any personal hygiene issues that develop as their illness progresses.

• Dementia sufferers may be concerned about the lack of privacy. Darken the room slightly, use covers and blinds over the windows and cover any mirrors.
• To simplify the process of maintaining hygiene, break each task into a series of simple steps. This will prevent sufferers from becoming stressed and overwhelmed.
• Use a handheld shower to maintain independence and install appropriate handrails to prevent slipping.
• Some people with dementia have a fear of water on their head, making it hard to wash them. . It may help to wash their hair in the basin separately.
• If the sufferer is incontinent, make sure they are regularly and thoroughly washed.

Dementia and sleeping problems

People suffering from dementia may experience trouble sleeping, making them distressed and tired. To prevent sleeping issues from worsening:

• Cut down on caffeine and alcohol
• Play soft music in the background when they are going to sleep
• Have a regular sleeping time and remind them when to go to sleep